Children with ME Questionnaire

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Oxfordshire ME Group for Action (OMEGA)

We would like parents, children and young people who are affected by the illness Myalgic Encephalomyelitis: (either themselves or a family member) to fill in this questionnaire, in order to help us to know what would be needed for future services in Oxfordshire and surrounding counties.

OMEGA surveyed all GPs in Oxfordshire in 2012 with LINk (now Healthwatch) Copies of the report are available. Following this the local NHS in Oxfordshire has set up a group to plan better treatment services for children. Represented on this group are OCCMET, OMEGA and AYME. and other services for children.

OCCMET (Oxfordshire Community CFS/ME Team) can already see young people aged 14 and over.

So that OMEGA can represent patients’ needs we’d like to know:

What has been most helpful in managing/coping with ME in your family?

Either your own illness, or that of your child. There are specialist clinics in other parts of the country, some children have been referred to them. Please state which specialist/Clinic/ community team you/they were referred to.

What has not been helpful?

If a clinic service is set up for younger people (like OCCMET – Oxfordshire Community CFS/ME Team) what would you like from it?

What can schools do to help students who have ME?

Have you any comments about education services such as home tuition, pastoral care?

Are you: ^✻

What county do you live in? ^✻